{"id":15158,"date":"2026-01-27T16:00:47","date_gmt":"2026-01-27T14:00:47","guid":{"rendered":"https:\/\/afapac.org\/afapac-se-suma-a-la-iii-jornada-por-el-dia-mundial-de-las-enfermedades-minoritarias-en-el-parc-tauli\/"},"modified":"2026-01-27T16:02:41","modified_gmt":"2026-01-27T14:02:41","slug":"afapac-se-suma-a-la-iii-jornada-por-el-dia-mundial-de-las-enfermedades-minoritarias-en-el-parc-tauli","status":"publish","type":"post","link":"https:\/\/afapac.org\/ca\/afapac-se-suma-a-la-iii-jornada-por-el-dia-mundial-de-las-enfermedades-minoritarias-en-el-parc-tauli\/","title":{"rendered":"AFAPAC se suma a la III Jornada por el D\u00eda Mundial de las Enfermedades Minoritarias en el Parc Taul\u00ed"},"content":{"rendered":"<p data-start=\"86\" data-end=\"401\">El proper <strong data-start=\"96\" data-end=\"120\">13 de febrer de 2026<\/strong>, l\u2019<strong data-start=\"124\" data-end=\"159\">Hospital Parc Taul\u00ed de Sabadell<\/strong> acollir\u00e0 la <strong data-start=\"172\" data-end=\"233\">III Jornada pel Dia Mundial de les Malalties Minorit\u00e0ries<\/strong>, organitzada pel <strong data-start=\"251\" data-end=\"297\">Centre de Medicina Gen\u00f2mica del Parc Taul\u00ed<\/strong>, que enguany posa el focus en <strong data-start=\"328\" data-end=\"400\">el repte d\u2019una Unitat Multidisciplin\u00e0ria de Displ\u00e0sies Esquel\u00e8tiques<\/strong>.<\/p>\n<p data-start=\"403\" data-end=\"644\">La jornada es concep com un <strong data-start=\"431\" data-end=\"462\">espai de trobada i reflexi\u00f3<\/strong> entre professionals sanitaris, persones afectades, fam\u00edlies i associacions, amb l\u2019objectiu de <strong data-start=\"557\" data-end=\"597\">sumar mirades i avan\u00e7ar conjuntament<\/strong> en l\u2019atenci\u00f3 de patologies d\u2019alta complexitat.<\/p>\n<p data-start=\"646\" data-end=\"697\">Durant la jornada es treballaran aspectes clau com:<\/p>\n<ul data-start=\"699\" data-end=\"1038\">\n<li data-start=\"699\" data-end=\"785\">\n<p data-start=\"701\" data-end=\"785\">La <strong data-start=\"704\" data-end=\"783\">visibilitzaci\u00f3 de les malalties minorit\u00e0ries i les displ\u00e0sies esquel\u00e8tiques<\/strong><\/p>\n<\/li>\n<li data-start=\"786\" data-end=\"849\">\n<p data-start=\"788\" data-end=\"849\">L\u2019<strong data-start=\"790\" data-end=\"814\">intercanvi d\u2019aven\u00e7os<\/strong> en diagn\u00f2stic, atenci\u00f3 i recerca<\/p>\n<\/li>\n<li data-start=\"850\" data-end=\"943\">\n<p data-start=\"852\" data-end=\"943\">La <strong data-start=\"855\" data-end=\"905\">veu i l\u2019experi\u00e8ncia de les persones i fam\u00edlies<\/strong> que conviuen amb aquestes realitats<\/p>\n<\/li>\n<li data-start=\"944\" data-end=\"1038\">\n<p data-start=\"946\" data-end=\"1038\">L\u2019<strong data-start=\"948\" data-end=\"987\">enfortiment de les xarxes de suport<\/strong> entre el sistema sanitari i el teixit associatiu<\/p>\n<\/li>\n<\/ul>\n<h3 data-start=\"1040\" data-end=\"1063\">Informaci\u00f3 pr\u00e0ctica<\/h3>\n<ul data-start=\"1064\" data-end=\"1265\">\n<li data-start=\"1064\" data-end=\"1093\">\n<p data-start=\"1066\" data-end=\"1093\"> <strong data-start=\"1069\" data-end=\"1080\">Format:<\/strong> Presencial<\/p>\n<\/li>\n<li data-start=\"1094\" data-end=\"1155\">\n<p data-start=\"1096\" data-end=\"1155\"> <strong data-start=\"1099\" data-end=\"1108\">Lloc:<\/strong> Auditori de l\u2019Hospital Parc Taul\u00ed \u00b7 Sabadell<\/p>\n<\/li>\n<li data-start=\"1156\" data-end=\"1193\">\n<p data-start=\"1158\" data-end=\"1193\"> <strong data-start=\"1161\" data-end=\"1170\">Data:<\/strong> 13 de febrer de 2026<\/p>\n<\/li>\n<li data-start=\"1194\" data-end=\"1233\">\n<p data-start=\"1196\" data-end=\"1233\"> <strong data-start=\"1199\" data-end=\"1210\">Horari:<\/strong> De 09.30 h a 14.30 h<\/p>\n<\/li>\n<li data-start=\"1234\" data-end=\"1265\">\n<p data-start=\"1236\" data-end=\"1265\"> <strong data-start=\"1239\" data-end=\"1254\">Inscripci\u00f3:<\/strong> Gratu\u00efta<\/p>\n<\/li>\n<\/ul>\n<p data-start=\"1267\" data-end=\"1364\"> <strong data-start=\"1270\" data-end=\"1297\">Programa de la jornada:<\/strong><br data-start=\"1297\" data-end=\"1300\" \/><a class=\"decorated-link\" href=\"https:\/\/www.tauli.cat\/tauli\/joomla\/CursosFpt\/Triptics\/202620.pdf\" target=\"_new\" rel=\"noopener\" data-start=\"1300\" data-end=\"1364\">https:\/\/www.tauli.cat\/tauli\/joomla\/CursosFpt\/Triptics\/202620.pdf<\/a><\/p>\n<p data-start=\"1366\" data-end=\"1624\">Des d\u2019<strong data-start=\"1372\" data-end=\"1382\">AFAPAC<\/strong>, animem a participar en aquesta jornada per <strong data-start=\"1427\" data-end=\"1543\">aprendre, compartir i continuar impulsant la visibilitat, la inclusi\u00f3 i una atenci\u00f3 especialitzada i de qualitat<\/strong> per a les persones amb displ\u00e0sies esquel\u00e8tiques i altres malalties minorit\u00e0ries.<\/p>\n<p data-start=\"1626\" data-end=\"1778\"> <strong data-start=\"1629\" data-end=\"1663\">M\u00e9s informaci\u00f3 i inscripcions:<\/strong><br data-start=\"1663\" data-end=\"1666\" \/><a class=\"decorated-link\" href=\"https:\/\/www.tauli.cat\/es\/actualitat\/agenda\/iii-jornada-en-el-marc-del-dia-mundial-de-les-malalties-minoritaries\/\" target=\"_new\" rel=\"noopener\" data-start=\"1666\" data-end=\"1778\">https:\/\/www.tauli.cat\/es\/actualitat\/agenda\/iii-jornada-en-el-marc-del-dia-mundial-de-les-malalties-minoritaries\/<\/a><\/p>\n<p data-start=\"1785\" data-end=\"1939\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-15153\" src=\"https:\/\/afapac.org\/wp-content\/uploads\/Jornada_1-1200x900-1.jpeg\" alt=\"\" width=\"803\" height=\"614\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>El proper 13 de febrer de 2026, l\u2019Hospital Parc Taul\u00ed de Sabadell acollir\u00e0 la III Jornada pel Dia Mundial de les Malalties Minorit\u00e0ries, organitzada pel Centre de Medicina Gen\u00f2mica del&hellip;<\/p>\n","protected":false},"author":4,"featured_media":15156,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-15158","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sin-categorizar","category-1","description-off"],"_links":{"self":[{"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/posts\/15158","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/comments?post=15158"}],"version-history":[{"count":2,"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/posts\/15158\/revisions"}],"predecessor-version":[{"id":15160,"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/posts\/15158\/revisions\/15160"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/media\/15156"}],"wp:attachment":[{"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/media?parent=15158"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/categories?post=15158"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/afapac.org\/ca\/wp-json\/wp\/v2\/tags?post=15158"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}